It’s MS Awareness Week! And for the occasion Dizzy and I have been considering what we, and others in the MS community, would most like people to be aware of about the condition. 🙂
Most of all, Dizzy and I would like people to realise that how we look is very different to how we actually feel…
Not that I ever look as good as Dizzy! 🙂 And no Dizzy was harmed in the making of these pictures – just a slight prod that Dizzy said tickled more than anything 🙂
When we asked other people they had so many amazing things to contribute, which I think a lot of people with MS can relate too. I know I can!
- If I seem preoccupied, it’s likely because the need to use the bathroom just made itself known and I need to quickly and carefully plan my next actions. – Mark
- It’s not easy forcing myself to exercise everyday but without it fatigue stops me doing anything and ability to walk and use my hand is much reduced. But people think I am OK because I exercise. – Karen
- Looking ‘well’ does not equal being symptom free. – LouLou
- All the things other than mobility issues that people can’t see. – Tango Mango
- I don’t know how to express that I am not quite ready for office working without sounding like I am resisting a return to the office environment. Stamina and fatigue are a real issue for me. – Colin
- Infrasound said about how hard it is to gain disability benefits.
- Even though I may “look normal” and “look OK” it doesn’t mean I’m not jiggered to heck on the inside – it means I’m trying ten times harder to get through all the day to day stuff that needs doing, and will pay dearly for it later! – FoxyBoxing
- We have to do things at our pace and not 100 miles an hour. – Andy
- I’m not bitter. I may not get better but I can be better. – Paul
- Living in bed is not a dream come true. – metameric
Thank you so much to everyone who contributed to this little post. And I hope you have enjoyed reading it. If you could make people more aware about one part of your chronic illness, what would it be? Is it the same as any of these ones? 🙂 xxx
Literally putting one foot in front of the other is a concentrated effort as is the case in nearly every aspect of life. You don’t have to “see” it to believe it.
It’s true. Especially as a lot of MS stuff you can’t see on the outside. x I think most of us can relate to this. Thank you so much for sharing it. xxx
awesome info here thanks for sharing it! <3
Thank you. 🙂 xx I hope you’re doing ok. xx
I can relate to the comments. I feel like the strange case of Dr Jekyll and Mr Hyde. I can wake up eager to do so much stuff, I feel I’m not sick, I don’t plan to be sick…then the reality hits me…I just want to sleep….
Oh yes. I get that often. I feel I can do anything, and then I actually get up and it’s a whole different story… Thank you for sharing this, as I think a lot of people will be able to relate to it. xxx
I’m trying to go back to school, and get my undergraduate degree. So pardon me if I don’t have a five year plan. My plan usually ranks to what I want to accomplish regardless how long it takes me.
Also, when I am asked if I have a learning disability my long pause is me trying to figure out how to say I have MS and sometimes I am gun go. Except the next day I may feel like I have all the learning disabilities.
College interviews suck when you can identify when the advisor is lying to you, and you know you have to be a better lair than them just to get a higher education.
I really hope you are able to get back to school and do your degree. x What are you hoping to do? What subject? xx I hope some of your college interviews are with more understanding people. They are out there! Sending hugs. xxx
I would like people to be aware varying mobile devices can be used throughout the day and not be so “shocked” seeing one walking about without a cane. It reminds me of Perry Mason’s courtroom where you’re trying to pull a fast one.
I think a lot of people can relate to this one! Thank you so much for sharing it! xxx
Great post on spreading awareness
Thank you Henriette 🙂 xxx
Missing the good days as they are fewer and farther between or so it seems lately. Nicer weather, sunny skies and the ability to take in some fresh air while reading these posts brightens my mood and brings a smile or a giggle to my face. Thank you for that. 😊
And yes, somedays really are an effort just to get out of bed in the morning to make it to the bathroom on time. But we just deal with it since what other choice do we have. One slow step at a time. 🤷🏼♀️
I agree with one slow step at a time. 🙂 On the trickier days, I tell myself this. xxx
Aww, thank you so much for your lovely comment Janet. It really means a lot to us. I hope you are doing ok, and enjoying the sunny weather. 🙂 xxx
I admire all of you for your stamina to get through the day when you wish you could just stay in bed. Thanks for sharing fellow bloggers’ comments Heather. I smiled at this line: “And no Dizzy was harmed in the making of these pictures – just a slight prod that Dizzy said tickled more than anything.” 🙂
Hehe, I felt it was important, as the stick looks rather dramatic!! Even I don’t really like looking at it, but Dizzy was fine. 🙂 She really gets into these pictures! 🙂 xxx
My favorite Dizzy picture will always be when she is smelling the sunflower – it always makes me smile and doesn’t the world need more smiles? XOXO and {{{{ hugs to both of you }}}
I am in the Emergency Room with my wife sleeping next to me. She is getting her first of 3 steroids, after receiving the news of her diagnosis 4 hours ago. I am her husband, and you made my tears a little less bad with your courage.
Hi Robby, I really hope you and your wife are ok. It is an awful lot to take in, but please remember that everyone is different with this condition and many, many people go on to live really happy lives. Both, of you don’t give up on your dreams! 🙂 And if your wife has relapsing remitting the steroids should really help! Please message me if you have any questions. I’m always here. 🙂 xxx
I loved all of the contributions! Such great reminders. Thanks for sharing.
Thank you xxxx