For MS Awareness Week, I wrote a poem! This year’s theme is being unfiltered, so I wanted to share something that showed the wide range of things that MS can impact. Please be nice though. I never write poetry, I have never performed a poem, and Dizzy refused to help! (I forgot to put gingernut biscuits on the shop this week…)
I realise I’ve missed loads out, so what would you add? 🙂 xxx
It’s Just an MS Thing…
It’s a not being able to get out of bed thing
And a having to hand onto the wall thing
It’s a not being able to think thing
As the words are constantly slipping through your fingers thing…
It’s a not being able to pee thing
But an always needing to pee thing…
It’s a looking fine thing
But feeling 109 thing…
It’s a wanting to eat thing
But a only being able to sleep thing…
It’s an always needing to sleep thing
Even though I can no longer feel my feet thing…
It’s a constantly changing every day…hour…minute thing…
It’s a feeling dizzy thing
In a world that is constantly spinning thing…
It’s a feeling always anxious thing
And a constantly telling people that… I feel fine thing…
It’s just an MS thing…

Love it!
Thank you 🙂 xxx
Love it!
Thank you so much 🙂 xxx
This is a seriously good poem and I have the background to know on all counts. It is direct, unsentimental, powerfully structured. Write more. Xx
Great poetry. May the Lord hears and answers your cry. Blessings ????
Thank you so much, Beverley. That really means a lot. 🙂 xxx
You are welcome ????
Thank you so much, Cathy. I will consider it for the new year. Just a few more short poems. 🙂 I have been terrible at replying on here. Been a hard summer. But how have you been? 🙂 xxx
I can just imagine how hard it is. I fight an anxiety problem and sometimes I just feel like I am sitting by the edge of a cliff and at any moment I will tumble over. I send you many blessings and all the best from me and Dottie to you and Dizzy.
Thank you. Anxiety can be horrible. I’ve struggled with it for a number of years now. xxx How have you and Dotty been? I’ve been rubbish at replying on here, but did you have a good summer? 🙂 xxx
We are all doing fine along with my two cats Freddie and Tish, They are a big help as well since they keep me on my toes, Summer was intolerably hot in Florida and I stayed in mostly. Then came hurricane season and that did not help my anxiety, So now I am ready to sit back and get through the winter along with the many memories during Christmas season. Wishing you the very best always.
Fantastic poem that resonated with me a lot! MS truly does suck! Xx
Thank you so much for your comment. I really appreciate it. 🙂 xxx
I loved your poem. I understood just what you were saying bout MS and how brave of you to do the whole thing facing a camera! So good on ya!! ????????????❤️????
Aww, thank you so much, Anne. That really means a lot. 🙂 I hope you are doing ok. xxx
One year ago I was diagnosed with Parkinson’s disease. Iam coming to grips with that now but life goes on as you know
I have not been in here in so long! How are you coping Anne? Don’t rush yourself – acceptance of these things takes a long time. Sending lots of hugs. xxxx
Heather – Thank you for helping us who do not have MS understand how you feel on an every day basis.
Thank you, Linda. That really means a lot. xxx
We should all know what you experience and your written word helps us a lot. Take care and hugs Heather. {{{ }}}
Very well done Heather!!!!!!
Thank you so much 🙂 xxx
Love this! Bravo!
And it’s a whole bunch of other things but I’m too tired to mention them and I probably won’t remember them all. BUT, they’re going to pop up eventually from my MS brain memory banks AND when I randomly bring my “finally remembered things” up in conversation I’ll be labeled “she’s losing her marbles” lol
Brain fog amongst all the physical things make life with MS comparable to a ride on a roll coaster, right down to peeing your pants or bringing up your lunch lol. It’s one heck of a ride!
It definitely is! And I also realised I had to stop the poem somewhere. 🙂 Otherwise, it may have got rather long. 🙂 How have you been? xxx
It’s a not wanting to be isolated thing
And not being able to walk out of the door thing…..
Those are brilliant ones, and I can completely relate to both. xxx