It’s World MS Day! And this year the theme is ‘Life with MS’, so me and Dizzy have thought of 5 words that sum up life with MS for us!
- Unpredictable
2. Exhausting
3. Frustrating
4. Challenging
5. Enlightening
These are mine and Dizzy’s five! We’d love to hear your top 1, 3 or 5 words if you have a chronic condition or maybe just your favourite words to sum up life?
Dizzy would also greatly appreciate any help with finishing off her equation. 🙂 xxx
I think Dizzy should be a poster girl for MS. Then she’d have a job and you could be her manager.
We’d actually love that! We’d go all over the place and I could then tell work I’ve found a new job! ‘Manager for a knitted donkey’. 🙂 Hope you’re having a lovely week! 🙂 xxx
Dizzy is so cute and I love how the photos lighten up the message about having chronic illness’s. My three for living with a chronic illness are: impatient (I don’t like to roll with the pain and hate how it doesn’t just go away so I can get on with things and be like a normal 18 year old), confusion (not knowing when it will flare up) and strengthening (silently making us a stronger person). I have honestly not looked at any maths questions since I took my leaving cert 😂 Sending you and dizzy lots of love 😊💗
Thank you for your lovely comments Elsie. I completely agree with all your words and can relate to all three.
Hopefully someone will be able to help Dizzy with her equation otherwise she’ll be looking at it all night!
Sending you lots of love too. xxx
Dizzy and you could have a TV show!
Aww, that’s such a sweet idea. Not sure anyone would be mad enough to let us on the telly though. 🙂 xxx
😀
Exhausting, confounding (a few years ago I could help Dizzy with the math), frustrating, debilitating, and unwelcomed.
Thank you for sharing your ones with us. They’re all really good and agree with them all. Think Dizzy might have to except that math equation isn’t going to get finished… xxx
😀😀
Have to go with
Challenging
Exhausting
Humbling
Debilitating
Life
Thank you for sharing your 5 with us. I hadn’t even thought of humbling but it fits perfectly. Xxx
Reblogged this on Chasing Kites in Neverland.
Thank you so much Claire for the reblog. 🙂 We really appreciate it. Xxx
I couldn’t NOT reblog this one! It’s such a wonderful one to raise MS awareness! And I just LOVE the pictures 😊 xxxx
Thank you Claire. Really glad you liked it and that you love the pictures. I’ll tell Dizzy! 🙂 xxxx
Aww Dizzy. For me naming things gives them power. My word denial 🙂
I can understand that. Denial is a good word too! I definitely have some days where that would be mine. xxx
I adore these posts, you and Dizzy do such a fantastic job! With my chronic conditions, I’d say these words sum up my feelings and day to day struggles really well, especially exhaustion, unpredictability and frustration. x
Thank you. So glad you like them and Dizzy will be very happy to hear that aswell. 🙂 They’re definitely the main 3 for me day to day aswell. xxx
Reblogged this on Pamela D. Beverly.
Thank you for reblogging too. 🙂 xxx
Awh Dizzy! 🙂
My 5 words – Humbling, Numbing, Frustrating, Exhausting, Gratitude. To explain the last one, I’m grateful for even the tiniest things now. I strive to not take things like movement, energy, and enjoying my family, friends, and the world around me for granted.
Also – x= 2.0655…. 🙂
I completely understand gratitude being one. That’s one I can really relate too because it does make you so grateful for the little things. I appreciate everything so much more than I use too.
Thank you so much for the answer! I even took a photo of Dizzy look happy with the answer but don’t know how to add a photo to a comment? She’s very happy to have completed it! 🙂 xxx
I love Dizzy. These photos of her are very touching. I think “enlightening” is one word I can relate to. To me it means that all the circumstances of my life both good and not so good can bring me new knowledge and understanding. Thanks for this lovely post.
I completely agree. Everything brings new understanding to both life in general and I find about myself too. Having MS has made me so much more aware of just what we do learn from everything.
Thank you for your lovely comments again. Dizzy’s very happy that you like the photos too. 🙂 xxx
Confusing, aging,lowering, thought provoking and accepting.
Thank you for sharing yours with us. 🙂 They’re all excellent words but I especially love thought provoking. I hadn’t thought of that one but it’s so true. xxx
Dizzy is so creative I love how she expresses living with a chronic illness perfectly!
Thank you for your lovely comment and for taking the time to visit our blog. 🙂 xxx
I can agree to all 5 of these. It’s exactly what I’m dealing with. I’m recovering from a MS relapse and it’s been challenging but definitely enlightening 🙏🏽 staying strong!
I really hope you feel better soon. I’m just coming out of recovery period after a relapse and it’s definitely been a difficult 6 months because of it. Enlightening too though! Keep looking after yourself. I always think relapses require a ridiculous amount of patience. xxx
Reblogged this on Dream Big, Dream Often.
Thank you!! 🙂 xxx