A week ago me and Dizzy started on our first DMD (disease modifying drug) for MS. The idea being that they help reduce the number of relapses that you have. We have been putting this off for a while…nearly 3 years now. But after a conversation with my nurse and doctor last week who think I’m having my third relapse in a year, it’s finally pushed us into giving it a go. 🙂
They started delivering these in August…we’re got quite a collection of them with more coming tomorrow….
The donkeys have even been making a tower out of them!
Our biggest worry has always been the potential side effects that can come with DMD’s. We have heard quite a few stories about the difficulties of being on Tecfidera at the start because of tummy issues and flushing.
Dizzy got on the case though, finding out the best tips! After following these we’ve had hardly no side affects (Dizzy’s quickly touching wood) and we thought we’d share these incase anyone is thinking of trying Tecfidera for themselves. 🙂
- Start on one a day. When you start they give you half dose tablets for the first four weeks. The idea is to take them twice a day but if you start on just one it gives your tummy a chance to get use to a small amount first. 🙂
Me and Dizzy do like the colour of them. 🙂
2. Eat with food! Lots of food! And take them at least four hours apart.
3. Preferable high protein foods…
4. Eat peanut butter (or some sort of nut butter or nuts). For some reason eating peanut butter helps. We eat our main meal, have the tablet and then have some peanut butter or cashew nuts straight afterwards. 🙂
Also make sure to drink lots of water throughout the day. 🙂
And that’s it! We’re now waiting for an MRI scan to see what exactly is going on but we’re really hoping the Tecfidera will help settle things down. My MS has been having a bumper year this year!
Have you ever started any long term medication and what helped you to overcome any side effects? 🙂 xxx